We have skipped around just a bit, but for those following along, we’re at round 73. This takes us up to “the” June before Kindergarten; we had some pretty big decisions to make about whether to send her to school or homeschool in a short 9 weeks.
Cognitively she was solid, language was spectacular and attention was as good as I had ever seen. Gross motor skills were age appropriate. She was still anorexic and the nervous joke around our house was that someone was going to have to go to school at lunch time and feed her.
Social kept improving all along but we still had that little bit of discomfort when around children her own age, Fine motor was okay, but certainly not what I would have considered age appropriate, although I found later she was within “the range” of age appropriate. So, a mixed bag. Most of our requisite kindergarten skills were there, but not complete enough to make me comfortable and I didn’t want to send her too early and set her up to fail. In particular, the social was the most concerning to me.
We are still on antivirals at this point and getting improvements but everytime we tried to take her off the natural antivirals we would lose the gains. I surmised that adding an immune modulator might help us and we chose Transfer Factor. Transfer Factor is an immune messengers, found in mother’s milk, transferred from mother to baby to educate the immune system. You’ve heard about the enormous benefits of breastfeeding and it is largely due to these “transfer factors”.
Transfer Factors, the product, work much the same way. You can read about and order Trasnfer Factor here. They even have a chewable product now that was not available when we were using it but the taste of the powder is not bad at all and can be mixed with cold, soft food such as apple/pearsauce or yoghurt. They also have a Transfer Factor (Transfer Factor Plus) with Cordyceps mushrooms but I was always concerned that the more ingredients that were in a product, the higher chance there was for a reaction.
I do have to stop and report that I never had, nor do I now have any other relationship with the company that manufacturers or sells Transfer Factor, other than that of any customer buying the product. There is a representative I spoke to at the company, Suzette Lawrence, who was very helpful in answering my questions.
A week after putting Savannah on Transfer Factor (only 2 capsules per day) we got two very nice improvements. The first with yeast, that is the yeast left, was gone. Many parents report yeast gets a lot easier to handle after 50 rounds of chelation, we had not noticed that here. Transfer Factor made the yeast GONE, not just easier to handle and what a welcome relief that was. Only parents of children with severe yeast can truly understand how wonderful this event was.
A week after being placed on Transfer Factor I had enrolled Savannah in a very relaxed, social-only, preschool/daycare for a few hours a couple of days a week. We were moving into a new school district in October and I thought maybe she could meet some children who she would start Kindergarten with if we did decide to send her to school as this preschool was in our new district.
The following is a little unbelievable but it is a true report: I went to pick Savannah up a week later after she started Transfer Factor and got there 20 minutes early. There were some kids coming on the playground at the time I pulled in. It was not time for Savannah’s regular playground time but I decided just to sit outside and watch the children.
As I watched the children, I became focused on one little girl who was in the middle of all the kids and who seemed to be in charge of directing all the activity. I saw several children calling to her and asking direction and where this little girl went, they followed. Oh, how I envied the social skills of this little girl and how I ached for Savannah to be so in charge and at ease with children her own age, just like this little girl.
I must have watched this interaction between this little girl and the other children for another five minutes when it dawned on me that this little girl and Savannah had on the same little jean skirt. And then I noticed that this little girl also had on the same color shirt as Savannah. I have to tell you at this point that I am very nearsighted, didn’t have my glasses, but did remember that I had a pair of binoculars in the glove box of the car.
To say I whipped the binoculars out of my glove box in a nano second is not an exaggeration. And what I discovered much to my surprise was the little girl I had spent almost 15 minutes admiring her self confidence, leadership and ease among the children WAS Savannah. I really wish someone had been able to capture the look on my face.
I must have set there for another hour just watching, I was way late picking her up but they were keeping the children on the playground and I wasn’t going to miss a minute. I can also say that although I thought or feared that these new found social skills might be fleeting, that did turn out to be the day that her social skills came on board and never faltered at all, ever. I’ve often thought I should write a book called “Things That Would Only Happen To Me” and I would include this story for certain.
Was Savannah’s new found social ease due to the Transfer Factor? I will never know for sure, I don’t know a whole lot of other children whose parents reported this upswing of social skills with Transfer Factor, but a few did. I will never know with absolute certainty but I will always think that the Transfer Factor had something to do with it, maybe in conjunction with chelation?
As the weeks went by and the social gains held it became apparent that Savannah would start to school as social issues were really my last “big” area of concern. Her appetite had picked up a little, her fine motor skills were coming along, everything was falling neatly into place for that all important first year of school.
Only Biomed parents will appreciate and understand what happened next. I turned around a month later and notice Savannah’s attention was OFF. Really? Wth? How could this be? so many times you fix one or two things with our kids and you get another problem but this was a return of an issue that hadn’t been an issue for sometime.
My mother noticed she seemed a little “tipsy” even but there was no yeast. The other thing that can cause this drunk-like behavior with slightly slurred words was high ammonia. Other symptoms of high ammonia can be; excessive sleepiness, confusion or hand tremors. We called for a blood test for high ammonia and yes, she did have high ammonia. The Dr, who was a Dan! actually said the levels were high but within the norm so recommended no treatment.
Again, my mother said no, this is not normal. Through research we learned that high ammonia levels can lead to portosystemic encephalopathy with resulting damage to the liver. Alpha Ketoglutarate (Or AKG) was the preferred treatment to “chelate” out the ammonia. The protocol for this was (1) 300 mg capsule of AKG per meal for 4 months. Sure enough, within 4 days of giving the AKG, Savannah’s attention was back to normal.
Autism and high ammonia are related. Some have postulated that high ammonia is a methylation issue and it could well be. I will fully admit at this point that although she looked much like every other typical child, she was far from healthy. We were not done treating or chelating. She only had this ammonia issue once, we used the AKG for four months and never saw the issue again.
You should also know that if you get your child tested for high blood ammonia, the sample has to be prepared according to specific instructions; namely the sample has to be put on ice IMMEDIATELY because ammonia will naturally accumulate in any blood sample kept at room temperature causing a false positive.
If the lab technician or phlebotomist doesn’t appear with a container of ice when they come to take your child’s blood, ask them nicely to get one. If they get agitated or say they are going to put it on ice as soon as they leave you, this is not good enough. Ask for the manager of the lab or the patients’ relations office or some other person in charge and nicely explain that you want the sample put on ice IMMEDIATELY.
Even if you are nice and calm, this will sometimes make the phlebotomist a little perturbed. The choice between the lab technician getting a little angry and my child getting accurate results from a test so they can get well? Not a choice for me that I have to spend anytime thinking over. There are a few lab technicians in the area I live in that aren’t too happy with me but again, my child is well so I do not lose any sleep over this fact.
Tune in next time to find out what happens when you put a very nearly, but newly recovered ASD child into a regular Kindergarten without an aide or without disclosing anything to the school. Boy, do I know how to live on the edge, or what?